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Support Groups:
Chair: Michelle Leyget, APRN, BC
Elizabeth Fox, parent
Cathy Sullivan, parent
Noreen McGillis, RN & parent
Summer Camps:
Chair: Kathy Regan, RN
Christie Blake, APRN, BC
Newsletter:
Chair: Mary Ann McDonnell, APRN, BC
Publisher: Dawn Sanders, Urban Digital
Research Updates:
Chair: Nancy Noyes, APRN, BC
Resource Development:
Chair: Tricia Lee, parent
Sissalee Hecht, parent & president of JBRF
Nancy Kindregan, parent
Michelle Legeyt, APRN, BC
Public Awareness:
Chair: Karen Lindstrom
Special Education:
Chair: Vicki Pillings, special education teacher
Tami Joia, advocate
Education and Training
Chair: Beth Muller, APRN, BC
Website Updates:
Chair: Kelley D
Faith Elliot
Media & Video Development:
Chair: Joseph Fitzgerald
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